Palliative Care

Palliative and End of Life care

Arthur Rank Hospice Charity - 01223 675777 

Sue Ryder Thorpe Hall Hospice - 01733 225900 

Sue Ryder St John's Hospice - 01767 642410

Palliative Care Adult Network Guidelines  

East Anglia's Children's Hospices - 0808 196 9495 (symptom management team)

National updates

 

Image of a person using a phone to call someone. There is text: '24 hour service specifically for patients with a life-limiting illness who need advice and guidance about palliative care. Call free NHS111 option 4. Speak to a specialist palliative care nurse about the many services offering care, support and guidance.

 

Palliative Care Hub - 111 Option 4

This 24 hour service provides advice and guidance regarding accessing care and appropriate services for adult patients living with a life-limiting illness in Cambridgeshire or Peterborough aiming to support patients to remain in their preferred place of care.

Patients, their friends, family, and health and social care team can access the FREE service by calling 111 option 4.

Palliative Care Clinical Nurse Specialists are available 24 hours a day, 365 days a year.

For further information visit Palliative Care Hub 111 - Arthur Rank Hospice Charity (arhc.org.uk)

Banner showing HSJ Award winner 2021

Pharmacy Emergency Palliative Medicines Service

A number of community pharmacies have been commissioned to hold stock of palliative and end of life care medicines for urgent or emergency supply when the patient's usual or nominated pharmacy is closed or out of stock of the required medicine.

Steps to accessing FP10 medication  Accessing End of Life Medicines on an FP10 Prescription ICB

Service Poster ICS Community Pharmacy Palliative Care Drugs Emergency Stock

Participating pharmacies contact details and regular opening hours  Palliative Pharmacy Opening Hours

Pharmacy Palliative Care Stock List (December 2022)

CPPE Palliative Care Gateway page - external site (opens new window)

Bereavement resources

The information leaflet below lists the main services across the Cambridgeshire and Peterborough area and national organisations that offer support for people who have lost a loved one.

Bereavement Support in Cambridgeshire and Peterborough Jan 23

Dashboard and data sharing (VISTA)

Our new regional Palliative Care Support Pathway solution is now on your Eclipse home page and within the Eclipse Vista Pathway Module.  The CCG Palliative Care Team has been working with the Eclipse team to enable our local requirements and priorities related to this vulnerable patient cohort to be built into this pathway. These requirements include the identification and implementation support of actions for patients in the following priority groups:

  • Patients on Palliative Care with GSF Stage D - Red
  • Patients on Palliative Care with GSF Stage C - Yellow
  • Patients on Palliative Care with GSF Stage B - Green
  • Patients on Palliative Care with GSF Stage A - Blue
  • Patients on Palliative Care without Care Plan
  • Patients on Palliative Care without Anticipatory Meds
  • Patients on Palliative Care without Resuscitation Status recorded
  • Patients on Palliative Care without Carer Support
  • Patients on Palliative Care without Preferred Place of Death
  • Patients on Palliative Care without Preferred Place of Care
  • Patients on Palliative Care without Informal Carer
  • Patients on Palliative Care without ReSPECT form completed

In common with the wider Eclipse Service this pathway module is not intended to be a replacement for your Practice Core Clinical System. Its primary objective is to support Practices, PCNs and our Regional Team to rapidly identify priorities and efficiently implement calls to action for these vulnerable patients. Ultimately helping to enhance both care and outcomes for this group.

As many of you will know the Eclipse platform uses regular (weekly at a minimum) data extractions from clinical systems. While there will always be differentials between datasets and systems driven by upload timings, regularity, and coding consistency your help in optimising data extraction activities, quality of coding and minimising data opt outs will be invaluable.  Both our central team and the Eclipse team are happy to help as much as possible.

Please find a step-by-step guide to navigating and using the Palliative Vista Pathway below.

The Eclipse Support team can be contacted via support@prescribingservices.org and we will be setting up specific training sessions.

VISTA Pathways Patients on Palliative Care User Guide (Feb 2022)

Palliative and End of Life Care Strategy (PEOLC) 2018-21

End of Life Care Strategy 2018 - 2021

Phase 1 action plan July 2018

Recommended Summary Plan for Emergency Care and Treatment (ReSPECT)

This section is intended for health care professionals who wish to have more information about the Recommended Summary Plan for Emergency Care and Treatment, otherwise known as ReSPECT.

ReSPECT is explained by Dr Zoe Fritz and Dr Stephen Barclay in further detail through a series of videos below. 

 

To watch all the videos below in succession click on the playlist.

Further useful resources for public and health care professionals - external sites

GP Mythbuster 105: Do not attempt cardiopulmnary resuscitiation (DNACPR) - CQC (external link)

Talking about dying 2021: How to begin honest conversations about what lies ahead - Royal College of Physicians

CPR Decisions, DNACPR and ReSPECT - Resuscitation Council UK (external link)

ReSPECT for Patients and Carers - Resuscitation Council UK (external link)

ReSPECT Resources including - Resuscitation Council UK (external link)